And then there's Frankie and her hair obsession... I've been letting my hair grow a bit longer lately, and Frankie's latest is to reach up and grab huge handfuls of it while nursing and yank fiercely, usually pulling out startlingly large clumps. So next time any of you all see me I'll be bald, AND have hugely muscular thighs (see post below).
So we have had lots of fun in the two weeks since I last posted. Jennifer came to visit with Riley and Shelby--a blast, as usual. They even stayed the night this time, which Anni thought was very cool. We've gone to yet more fairs for our little thrill-seeker, and combed garage sales together to find a new winter wardrobe for Annika. At one garage sale we found a bicycle trailer for super cheap, which I snatched up. Sure enough, Annika *loves* going on bike rides with me. She sits in her little trailer on a blanket cushion with her dolls beside her and a cool drink in her hand and commands, "Faster, mommy, faster!" as I huff and puff up the next hill. OK, it's very good exercise for me, which is exactly what I was after. In two more months, Frankie will be old enough to go on the rides with us (there's room for two in there).
It's been a very cool summer here, so once we returned to the mid-80's this week, I got the pool out for one last hurrah. On Sunday Anna, Demi, and Sabrina all came over. They had a good time splashing around in the pool (and doing the "water slide"), and then they chased butterflies with Anna and Demi's new butterfly nets. They even had two little butterfly cages to keep the butterflies in until the end of the day, when they let them go. Annika loved seeing the butterflies up close, and, even more, enjoyed following the big girls around for the day. Then today Gillian (and her mommy and baby sister) came over and more pool fun was had by all. Gillian is looking forward to riding in the "princess carriage" (aka the bike trailer) with Annika next time they come over. The next time any of you see me, I'm sure I'm going to have thighs like Popeye's forearms. And speaking of weirdly exaggerated body parts, Anni has been hit in the lip at least 6 times in the past 3 days (on the slide twice, on the teeter-totter twice, once on the table, and once I don't know--she just showed up with a bleeding lip). So she's got the Mick Jagger lips going on right now. Or I guess Angelina Jolie for you younger generation...
Have I ever mentioned that Frankie is obsessed with cat hair? I think I have. How I can vacuum everything (furniture included) and Frankie will still find the one remaining bit of cat hair within five minutes? Did I mention that she really likes to eat it? And that if I try to get it out of her mouth that she will clamp her mouth closed so tightly that nothing short of a forged steel crow bar will get it open? And that after she swallows it she opens her mouth and grins at me triumphantly? Well, so Joerg reads about how cat hair (I guess hair in general) can cause blockages in the intestines. Which of course got me very worried as Frankie only poops maybe every 3 days, which just seems so not enough to me. So of course I have to call our doctor and ask about this. And of course I have already called our doctor at least 3 times previously worried about Frankie's lack of poop. So I explain about the cat hair to the nurse, who says she will check with the Doc. When she calls back she tells me that he says as long as she's not uncomfortable and continues to poop regularly, no big deal. Plus he offers me this great advice, "Try to keep her from eating cat hair." Hmmmm. I did laugh a bit, but refrained from any smart-ass comments as I really do like our pediatrician and his staff (except for just that one nurse who sounds like she is so burned out she needed to retire yesterday). So I'm trying to relax and view it as some sort of cosmic karmic balance, to make up for the fact that Annika pooped 8-10 times a day until she was well over 3 years old. (And since her swollen belly only allowed her to wear Pampers Cruisers, size 5--the most expensive diaper you can buy I do believe--we went through loads and loads of money on diapers alone). Poop has been such a huge issue in our lives, let me tell you...
Anni's imagination is in high gear lately. The doll house has been just great for all her pretend games. Tonight I was upstairs playing with her, while Frankie growled and crawled around in the middle of the toys, giggling uproariously whenever her big sister made eye contact with her. Annika very carefully arranged the dollhouse to her liking, very precise in her weird little 3-yr-old way (2 toilets in the bathroom, beds in every room, towels stuffed in the oven...) Frankie trundled over and pulled herself up on the dollhouse, then stood there like a wobbly Godzilla flailing her arms to send all the furniture flying, laughing in her vaguely menacing baby way. Of course, Anni cried, "Oh, no, Frankie!!" Then she looked at me and shook her head and said, "She just doesn't understand..." I pulled Frankie over to the other side of the room and gave her some different toys, while Anni began matter-of-factly to restore order. I was really impressed at how calm Anni remained during this scene, especially since she has been trying out "drama queen" as a new persona. A few minutes later, Anni informed me that all the babies were in bed, and that they were going to get a surprise in the morning. As this was her fantasy world, 30 seconds later it was morning time and everyone woke up and piled into the car (the dog rides in the trunk, as usual). Anni drove them over to her little stable, and announced that the surprise was a pony! Totally her dream right now, as she was so in love with the ponies at the fair. She has 3 ponies, "Comet", "Twinkle", and "Nibbles". The names came on the boxes--if she had been in charge of the names, they never would have been so conventional (her latest doll is named "Salt"). Anyway, the chosen pony was Nibbles. Only, Anni pronounced the name, "Nipples." Well because I didn't get enough sleep last night and have just turned 8 years old, I just couldn't stop giggling everytime she said "Nipples." Anni gave me a very disgusted look and said, "Stop laughing at me, Mom. That is soooo annoying!" Of course, she can pronounce "annoying" perfectly...
Annika has an imaginary pet, a baby squirrel named Kelly. She "rescued" him outside one day a few weeks ago, and he's been with us ever since, causing much mischief--hopping into her morning yogurt, splashing in the bathtub, making general messes (roll eyes). She's been asking for a guinea pig and a hamster, but seems to accept our explanation that a 2-cat household is not the best place for little rodents. Thank goodness. Annika is pretty pleased with Hepburn lately. I guess the old lady has finally adjusted to the idea that we now have children, and allows Anni to pet her. Annika is thrilled with *her* cat! I'm sure Red will finally adjust, too, but I imagine it will take him maybe 4 more years--psycho cat that he is.
We just returned from a trip to Chicago a few weeks ago. Annika had another checkup CT scan, which again showed her lymph nodes unchanged. Some of her varices have gotten a bit worse, and she may be collecting fluid in her belly, but overall her doctors were pleased with the results. The stuff that's getting worse is par for the course, given that she has a major blood clot, but she could be getting worse much more quickly. Mainly she seems back to holding her own again. I have been so impressed with her lately. About a month ago, she suddenly decided that she no longer needed to sit in my lap for blood draws. So now she just hops in the chair all by herself and holds out her arm with the good veins. This was the first CT she's had for a while without a PICC line, which meant that she needed to have an IV placed that morning. In all the other rooms we heard the nurses through the curtain telling the kids not to look while they placed the IV, but Anni told them that she really wanted to see, and she watched them the whole time. She held completely still, and was just perfectly cooperative. She drank the contrast without even a protest, and sat still while we waited our turn. Boy, it is amazing how much easier these tests are when your child actually feels good! They are just so much more capable of dealing with it all when they're not sick. One of those unfortunate ironies that those kids that need the tests most are those for whom they are most difficult.
Of course, I also reflect sometimes on the things that Anni does not do so well. Like the fact that she is a super picky eater, and just will not eat what Joerg and I eat at mealtimes. On the other hand, she does eat relatively healthily. Relatively. She really likes carrots and green peppers and apples. Basically, if it crunches, she will eat it. It would be nice if she would eat what we eat, though, especially as Joerg and I do make an effort to eat healthily most of the time. On the other hand, it has occurred to me that she learned to eat in a really weird situation--in the hospital with a food tray being brought up to her. So her first experiences with food got her very used to eating her own "special" food, and not what mommy or daddy ate. On top of that, I watch how readily she allows her blood to be drawn, her blood pressure to be taken, how she breathes in and out on cue for the nurses and doctors listening with a stethoscope, and think to myself, "Well, how many kids her age can do that?" I guess that's one reason that it's nice to know other "liver families," as many of them have had these same thoughts and problems.
Speaking of which, we went to Chicago the day before her CT and met up with another liver family. Anna is 1 year younger than Annika, and it turns out that she was at Children's having her Kasai at the same time that Anni was hospitalized after her second transplant, but we didn't meet up then. Annika had a great time at the zoo with them, and we're hoping to get together with them again soon. And Anni's great friends, Riley and Shelby, are coming for a visit this week, which we are really looking forward to.
Annika is going to start preschool in September! It's only 2 days a week for 2 hours, but it feels huge. Anni has already met her teacher, Mrs. Val, and she really likes her. Her class will only have 8 kids, with 2 teachers, and she will be in class with her new friend, Gillian, whom we met in Ballet class this summer. Gillian has a genetic immunodeficiency, so her mom and I have bonded over the difficulty of trying to keep immunosuppressed toddlers healthy. Plus, Gillian loves Anni's pretend games, too, and is just as energetic and outgoing. On top of that, Gillian also has a new baby sister, so the girls have a lot in common.
Annika's baby sister is continuing to grow ever more adorable. She now loves to wave, especially at her Dad, and she also enjoys clapping and is just beginning to blow kisses. Annika and Frankie have a few games they play together. A highlight of Frankie's day is getting to take a bath with her big sister. She watches Anni very carefully to imitate what she does. Thus, when Anni puts her face in the water to blow bubbles, Frankie does too, only to come up sputtering (but happy). Frankie's favorite game is "splash together." Frankie begins to splash in the water, and then Anni joins in and they both laugh uproariously. Frankie and Anni also like to play "scream together," usually in the kitchen for some reason. The game is exactly like it sounds, and although they think it is great fun, I can only take it for about 10 seconds. Luckily, Anni understands the concept of "indoor voice," and also that sometimes Frankie does things that she isn't allowed to. Usually if I distract Frankie with a new food or a toy she also stops screaming. By the way, this is not an unhappy scream that these girls do, it is purely joyous "test out my lungs" kind of scream, but no less hard on the eardrums.
She lay on her back
for a few seconds,
at the textured ceiling
with the mysterious
spaghetti sauce stain.
flapping her arms and legs
there on the floor, as if to swish
the imaginary snow
into a snow angel.
"Falling down is also a gift!" says she.