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September 26, 2005



I'm so sorry the hospital visit was awful, and has to be repeated, and that a terrifying surgery is looming ahead. I think you do an amazing job of parenting in the face of all of this. I don't comment a lot because I don't know what to say, but your family is in my thoughts every day.


Oh, Moreena, I'm sorry that the procedure was so sucky. And sorrier that she has to go back. And even sorrier about the need for a shunt.But so happy that she was able to enjoy Ralph's visit.Still thinking of you everyday.

Beanie Baby

Moreena, I'm so sorry that this didn't turn out the way you had hoped. It must be so hard and disappointing--and poor Anni, too, who has to go through all of this again on her birthday weekend.I'll keep all of you in my thoughts and keep on checking a thousand times a day for an update.


Awww what a precious girl! The outfit, the crown, the plan to lure Ralph back! I LOVE IT! It just amazes me in spite of all that she has gone through - her little spirit. I loved the movie - I love seeing Anni.Moreena - I'm sorry the hospital visit didn't go as you hoped and I'm sorry that you guys are facing the surgery. I cannot imagine how you must be feeling. Try to hang in there - I think you are doing a magnificent job! I also think you deserve Bruce Springsteen!!You are all in my thoughts and prayers and I was so happy to see an update!tina

Becca - momofnataliebear

Moreena-I'm sitting here wanting to do something...but what. I've been there, well, you know that. I read your last post, understanding and reliving every word, yet for the life of me I can't figure out what to do to make it better. I mean we've lived the last 6 months at CMH, you'd think that I could think of something, anything to make it all better. Ah-ha...I think I have it...off to do secret work that will make Annika happy...


So glad to hear an update, I was getting worried. Don't feel too bad about the 0 for 3 thing. You weren't lying to her, you can't always predict what's going to happen, things don't go the way they are supposed to go. Annika is always in our toughts and prayers.

Phantom Scribbler

Oh, Moreena. I wish I wish I wish there was something we could do besides listen. We are thinking of you all every day.The photo is beautiful. And *I* thought the stalker joke was funny, even if no one else did. Or maybe I was still giggling over the "You're better than a breast full of milk any day!" line...


Oh, Moreena....I'm holding you all in my heart. Thanks for the great story about Ralph.


Moreena,I am so sorry that things didn't go as planned at the hospital. I know that Anni knows it isn't your doing.Can they do the banding latex free?That stuff about Ralph was heartwarming and hilarious. That movie--sweet.Anni is precious, and she has to endure so much. I understand why you want to delay some of the procedures.Hugs to you. Your family is in my prayers.


She will still trust you, even if you were 0 for 3. I remember telling my son that if he didn't eat on his own they would have to use a n.g.tube. The kid ate, and they used one anyway. I felt awful. I'm sorry you had a rough time. I'm glad Annika saw Ralph. Thank God for people like him, and you. Hang in there, you are all in my thoughts and prayers.

Yankee T

Moreena, so sorry that it was such a rotten ordeal for both of you. She is so brave and strong-she gets it from you! You are on my mind, and I am sending loving thoughts your way. How's Frankie holding up?


I get your sense of humor. And I appreciate it. My unfunny comedian comes out everytime we step foot in the hospital. I think Kajsa's nephrologist thinks I'm insane (harmless, but insane). I'm so sorry that things totally sucked for you guys. I don't know what to say about the surgery. Reading your thoughts on all the holidays and milestones got me all weepy again. I send you bits of my stength every day to help you get through this...to help you all get through this.


Tell Anni, Marisa HATES the mask too and it's ok! HUGS to Anni and Mom!


I'm sorry this was so awful. I've added you to my prayer list.Have you considered hypnosis to help in accepting the oxygen mask? I'm an RN and a hypnotherapist, and pre-surgery or pre-procedural hypnotherapy works really well for children. It doesn't take long, and the hypnosis can be done with your child on your lap.It's a thought anyway. :)PS -- my sense of humor must be similar to yours, I think -- I thought the stalker comment was hilarious!

Rory Kearn

My thoughts are with you and your family. I know I used to get tired of people telling me that I'm so strong....that it's amazing that I am getting through my life. But really....you are amazing. And I hope it's OK that I let you know that. I'll send good thoughts your way.Rory

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Falling Down, November 2004

  • Balloon in hand, my 4-year-old
    twirled across the kitchen floor,
    singing nonsense words
    in her own key.
    "It's my gift!" she declared
    to the world at large, which
    was really only me,
    sitting at the table. Enough
    twirling, and she lost
    her balance, tumbling
    to the floor in a theatrical
    slapstick of elbows and knees.

    She lay on her back
    for a few seconds,
    at the textured ceiling
    with the mysterious
    spaghetti sauce stain.
    Suddenly she
    flapping her arms and legs
    there on the floor, as if to swish
    the imaginary snow
    into a snow angel.

    "Falling down is also a gift!" says she.

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