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September 16, 2005



Hang in there, moreena! It is so painful to hear about you listening to your girls being lovey with each other like that, something that I just adore in my own children, and you're thinking about the scary future implications.I'm wishing good thoughts for you and for Annika.

Beanie Baby

(((hugs)))There was one time when one of the doctors, during the ultrasound fiasco, briefly discussed fatal dwarfisms. It was horrible for the brief time it lasted. I can't imagine living there.It's not self-pity. IT's one of the scariest, hardest things to contemplate. You are doing a fabulous job.I'm thinking of you, and Annika, and Frankie.


Oh my! I am sitting here alternately laughing and crying! I have no words to comfort you Moreena - I wish I did. You have two such beautiful girls. Precious girls. And to think of something happening to either of them must be unbearable. You have been so incredibly blessed to have a daughter such as Anni. Your stories about her never fail to delight me. To me, she seems a constant source of joy - a little sunbeam who lives live to the fullest. My prayers continue that you have many more years to enjoy this precious gift. I imagine you must be on pins and needles waiting for this surgery. Hang in there and try to enjoy this time. Remember so many of us out here in cyber land are holding you all close.(((Moreena)))


If the worst happens, you'll find a way to survive, and you'll keep loving Jorg, and Frankie, and Annika, too. With all that you've been through, you already have all the strength you need to cope with that particular worst-case scenario. You've done the prep work for it.This is the picture I have in my head: Anni's on the phone with you because HER daughter has a fever, and you're telling her about the rough times you went through when she was that age, rough times she doesn't even remember now. By the end of the call, you're both laughing.

Becca - momofnataliebear

Big bear hugs coming your way. Perhaps, Anni would like to dress as a Nataliebear? :)We're praying so hard for you. I wish there was more that I could do.

Phantom Scribbler

Oh, Moreena. This is probably the least self-pitying thing I've ever read.Sending you hugs, thoughts, and prayers. And keeping an eye out for bear costumes.


MoreenaI have been following Annika's recent developments. Just wanted to let you know you guys are in our prayers, at the top of our list. Karen - Jen & Jon's mom


ok, I am trying to learn how to leave comments here, forgive me if this posts twice. I have been following Annika's recent health developments. Just wanted to let you know that you guys are at the top of our prayer list. Moreena, you are doing such a wonderful job as a mom. It is evident in both girls. Annika seems to be wise beyond her years. With love & prayers,Karen - Jen & Jon's mom


I wish I could say something to you that would ease your fear and pain, I really do. Words have so many limitations, especially when it comes to emotions. I understand what you mean when you talk about your girls relationship. It's like some totally unexpected separate wonderful thing blossoms on its own. I'm watching it happen between my sons. I pray to God that Anni is okay, with all of my heart. I pray that Anni's body will be able to keep her amazing spirit here with us. Stay strong.


Moreena - I'm sorry - the earlier *annonymous* post was me - tina!

Amy.... Carly's Mom

Moreena,You and your family are in my prayers. I think it's so beautiful that you always cherish the "every day" occurrances and tuck them in your heart. You describe them wonderfully...I can just see that little gift silently opening her door to make sure you know she's a princess! Thinking of you.


Moreena, you are all in my thoughts. Big hugs.And about the bear thing...brown or black leotard and tights, black paper taped onto her nose, brown or black ears on a head band?


Oh Moreena, it's not self pitty, you are worried about your litle girl, it's only human. Sending you big hugs, as well as your whole famiiy including Annika of course. You all are in our thoughts and prayers.

Lisa and Aiden

I will be praying for you guys... Your words brought me to tears.God bless Anni and what she has to face. God bless Jayli and the mark she left behind for all of us. I think of her all the time, and always with a smile. I will thinking of you during the surgery and want you to know that we are PRAYING.

Yankee T

Oh, Moreena, I wish I could help. That kind of sweet conversation between my daughters made my eyes well up, and we had no worries. Take care of yourself through all this and don't get too tired; it makes everything worse. You and Jorg and the girls are being held close to my heart.

Stacy - Tanner's mom from CLASS

Moreena -Poor Anni is wise beyond her years. We're praying for wisdom on the doctor's part in the coming weaks - that they make the right choice for Anni. We're also praying for Anni to remain "stable" in the meantime. You're in our thoughts.

Laurie, Ashley's Mom from CLASS

Oh Moreena, even though CLASS is down I try very hard to keep up with all OUR KIDs. I check your site just about once a day. I enjoy reading about you and especially your girls.Self-pity, it's not! I am so sorry to hear that latest on Annika's health. And knowing that this is the road that Jayli traveled must be making your head spin! I am praying that Annika's road is different that she finds Holland again instead of another god forsaken place. Prayers and Hugs to you, Jorge, Frankie and especially "Princess" Annika!Laurie, mom to Ashley from CLASS


I'm so sorry. Please know that my thoughts and prayers are with your family. I know it is hard, but enjoy this good as you have been doing. You are doing a wonderful job giving them so much love and happiness. Your children are precious..."I'm a Princess! Not a Prisoner!" Perfect.

Robyn, Emma's mom

Moreena, I am praying hard for you guys. It's not self-pity at all. I have nothing helpful to add, except the bleeding part of Emma's liver disease was horrible and scary and I'm so so so sorry.


Annika and Frankie are an adorable pair. There's so many possible futures in store for them. One is sincerely unfathomable. My hopes and dreams are with you guys.:.(Google had some decent hits for homemade bear costumes.

Shannon, Little Marisa' s Mommy

Moreena,As always, I laughed and cried as I read through your past few posts. I've been MIA for a while as far as the computer is concerned and had no idea that Annika (and you) had gone through so much recently. As I read your words, Marisa's (thankfully her only) bleed vividly came back to me. My prayers are with you, your family, and your doctors. May the right choices be made for her to finally be a healthy little girl. I'll check back often for more updates.Love,Shannon, Little Marisa's Mommy


M-For bear gear I would recommend one of daddys or mommys mohair sweaters , or snuggly textured tannish/brown sweater or inside out sweatshirt. You can also fashion brown tights/pantyhose into a bear hat. Cover headband with hose and fashion brown paper ears! Eyeliner to the face for whiskers and panyhose again stuffed with tissue paper for the tail . Voila! Growl , growl..okay, onto the sappy stuff. Keep crying, blogging, filming, talking and get it all out- you are living a real life and it is tough, so hang in there. Oh and give/get lots of hugs and kisses. Wishing you the best... suzanne , www.specialneedsmom.com




Hey, when we want to dress up as something, and don't want to go out and "buy" all the stuff, we start digging around...a bear. Hum, how bout mittens? Does she have a sweat suit in a neutral color? Can you pin a sort of "bear tail" on her, something sort of short, but bunchy? Paint whiskers on her face? Is there an old tobaggan or so that you could sew or paste scrap fabric ears on to look like a bears? Even pasta noodle (the short kind, like macaroni) somehow affixed to the end of the mittens, like claws? Let her eat honey on anything one day? Just some out there thoughts, but when I read your stuff, I wanted to pitch in...blog away to help diffuse your frustration and confusion...writing is a perfect outlet, and through this forum, you get support from others, too! Prayers for you, and your children, and husband.


Moreena, I have been thinking a lot about you and your family...thank you for continuing to keep us updated and entertained - your little ones are so precious, smart and funny.

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Falling Down, November 2004

  • Balloon in hand, my 4-year-old
    twirled across the kitchen floor,
    singing nonsense words
    in her own key.
    "It's my gift!" she declared
    to the world at large, which
    was really only me,
    sitting at the table. Enough
    twirling, and she lost
    her balance, tumbling
    to the floor in a theatrical
    slapstick of elbows and knees.

    She lay on her back
    for a few seconds,
    at the textured ceiling
    with the mysterious
    spaghetti sauce stain.
    Suddenly she
    flapping her arms and legs
    there on the floor, as if to swish
    the imaginary snow
    into a snow angel.

    "Falling down is also a gift!" says she.

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