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October 04, 2005

Comments

Sarah

I do not watch this show, but have seen shows such as ER that have had organ donation portrayed in a way that made me "uncomfortable." One was about living donation. In this episode a woman needed a liver due to hepatitis C. The doctors called in her little sister who was a senior in high school. They tested her (which only took 5 minutes in the ER) and she turned out to be a "perfect match" Very unrealistic, but the thing that made me cringe was that she did not want to do it, and the doctors pushed and pushed and tried to make her feel bad about her decision. I don't know about other hospitals, but at Northwestern in Chicago, they make sure that you want to do it before your tested. I was never pushed into doing anything, I was the one to push the doctors into getting tested. There were other ones, but that one sticks in my mind the most.About the doctor that hung up on you, I don't know this doctor, but I am glad to hear that you guys filed a complaint. No one should ever be hung up on like that by a doctor. While I was inpatient at Northwestern after my living liver donor operation (I believe it was the second day) I felt I was being pushed out of the hospital too early. The doctors came in and I was in horrible pain. They told me that I could go home, and I told them I didn't think I was ready. One of the responses to that made by a doctor on their team was, "don't you care at all to see your daughter?" I was horrified. He actually made me second guess myself, that I didn't care about Anna? I called Jason and started to bawl. This made him very angry, and about 30 minutes later the social worker came in apologizing and told me that I could stay for as long as I needed to. Later I learned that Jason called to complain. He told them "she shouldn't be made to feel that way, of course she cares about her daughter, she just gave her part of her liver!"

Yankee T

Moreena, thanks for posting this and for keeping us informed. I am happy to tell you (I don't think I already told you, did I?) that Older Daughter signed up to be an organ donor when she got her drivers license, due in large part to my telling her what I have learned from you.Please know that your family is in my thoughts daily.

Phantom Scribbler

I am completely in love with weird robot guy and his amazing chest hair. Thanks to both you and Annika!

Rowan

That is the first episode of Grey's Anatomy that I have ever watched. And I must admit that I thought of you guys as I was watching it. It's weird how many things seem to revolve around donation these days. It's like when you're pregnant and everyone else seems to be, too. I had a hard time with this show. I kept thinking. "Yah, the dad's a really bad person, but where would you draw the line?" It all just seemed so contrived.There's so much about transplantation that I just don't know enough about yet. We're learning as we go, and we just haven't crossed that bridge. (But we're one step closer. Today was the dental appointment. No decay/infection!!)I'm learning so much from you. Even on an emotional level. Thank you. I must, also, express my gratitude for all the links. I've visited the UNOS site, but am eager to peruse some of these others.

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Falling Down, November 2004

  • Balloon in hand, my 4-year-old
    twirled across the kitchen floor,
    singing nonsense words
    in her own key.
    "It's my gift!" she declared
    to the world at large, which
    was really only me,
    sitting at the table. Enough
    twirling, and she lost
    her balance, tumbling
    to the floor in a theatrical
    slapstick of elbows and knees.

    She lay on her back
    for a few seconds,
    staring
    at the textured ceiling
    with the mysterious
    spaghetti sauce stain.
    Suddenly she
    began
    flapping her arms and legs
    there on the floor, as if to swish
    the imaginary snow
    into a snow angel.

    "Falling down is also a gift!" says she.

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