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July 20, 2006

Comments

Beanie Baby

Thank you!

I wish I had a better term than special-needs, too. None of them seem to cover it all: different--different than what? Not normal--according to who? Special needs--what kind of needs, special in what way? Disability or disabled--but is being a dwarf a disability necessarily? It's all a big tangled mess, IMO, and it drives me nuts.

"Shaking your fist at the sky" does a pretty good job, though. ;)

epi

Hmm, well, I'm not a mother (still a bit young yet, imo), so I don't want to clog Andrea's post (although thanks for pointing me to a new blog to read), but I think she has an important point. I'm curious if it holds for those outside of parenthood, though; am I drawn to blogs like yours and trish's and others because I am "different" in certain ways or for other reasons? Would I stop reading this if I were to have a child who was not special needs? I'm curious how these overlap, and hopeful that perhaps more people can appreciate reasons to be drawn in : )

anon

I remember hearing a term for "special needs children" that I have always enjoyed and feel it does justice to this special kids - "exceptional child"

Chantilly Lady

I've often felt that maybe I shouldn't be reading your blogs...that I don't belong in the mommy blogoshere (special needs or not)...because...well, because I don't have children with "special needs"...and I'm not even a mom!!!
I just graduated from University, I live in a mini apartment and I don't know what I'll be doing in the future...at first I felt like I shouldn't even be reading your blog because I wasn't part of the same reality as you. I'm sure others in my situation have felt this way...like somehow we are crashing a party we weren't invited to (for lack of a better analogy)...because in this instance...the people who are not mommies of children with "special needs" somehow become 'different'.
I've accepted being 'different' because for some reason I am compelled to read about your two beautiful children and your wonderful family.

anglophilia

My kids are "special needs"... though not in the traditional sense... in the sense that they seem to "need" an e"special"ly exorbitant amount of my attention!!

Seriously, despite my so called "normal" kids, I read this blog (and Christy from Alaska's) because you both provide an insight into the preciousness of our children's lives that I so easily forget in the day to day stuff. Your blog reminds me that life is not about the destination but about the journey. Life is fragile even for healthy kids. I don't want to miss a moment of it, and this blog serves as my daily reminder not to.

esty

I just wanted to say that I read your blog(s) -- and in fact I could say this about all the blogs I read -- because they are well-written and engaging. On the surface you and I have nothing in common, but the stories you tell prove to me that we do.

natalie

I read this before I went to bed last night and couldn't get it off my mind...then I debated on responding. What right, really, do I have in being part of this "club," this blog ring? I am a married mother of a nine month old little girl. She was born with a club foot (hang with me here...I'm getting to my point). Her little tiny foot is how I found your previous blog and now clubmom. She couldn't wear dresses b/c of the casting, surgery, etc, etc, etc. When she was FINALLY able to wear dresses, I went to e-bay and bought some of the most precious dresses from a liver friend of yours. That's how I found you and Annika. So, back to my question...do I have a right to follow your story? Can I relate? I hope you don't mind. I am a mother of a "normal" child. Her little foot is healing. I check on Annika every few days. I pray for you when she's having a bleed or when she was in the hospital. I laugh at her sweet little quips about life and learn so much from your mothering techniques. So, thank you...thank you for sharing your life with us. Thank you for making Annika and Frankie so real. Thank you for your honesty about the trials and thrills of motherhood. So, even if I don't belong, even if I'm not in the "circle," thank you.

moreena

Thanks everyone for your responses so far. They're thoughtful and thought-provoking.

I did want to make clear, though, that Andrea's point was that she thought *more* parents should be reading and responding to the parenting blogs that describe different experiences of blogging.

I hope that I never make anyone feel like they shouldn't be reading this blog just because they don't have kids or their kids are "normal."

It's a tough question, and some of your answers make me wonder how self-limiting we tend to be, so that the lack of broader concern for special needs kids issues is a matter of a self-imposed isolation.

laura

as inappropriate as it is, our family has embraced the term short bus.....hey it worked for th homosexual community with derogatory epithets, why not for our amazing children. I recently blogged a bit about my little man and the way he scares the playground moms to death while his mama smiles and waves.- http://adventuresinjuggling.blogspot.com/2006/07/learning-to-fall-down-sometimes.html

Missy

I have 3 completely normal kids and I thank God daily for them and their health and I pray for your little girl. I can't remember now how I found your blog, but it captured my heart right away and I check a few times a week to read what is going on in your lives. I pray for all of you and rejoice in the cute things that happen in your family. I read because you have a talent for writing and it interests me.

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Falling Down, November 2004

  • Balloon in hand, my 4-year-old
    twirled across the kitchen floor,
    singing nonsense words
    in her own key.
    "It's my gift!" she declared
    to the world at large, which
    was really only me,
    sitting at the table. Enough
    twirling, and she lost
    her balance, tumbling
    to the floor in a theatrical
    slapstick of elbows and knees.

    She lay on her back
    for a few seconds,
    staring
    at the textured ceiling
    with the mysterious
    spaghetti sauce stain.
    Suddenly she
    began
    flapping her arms and legs
    there on the floor, as if to swish
    the imaginary snow
    into a snow angel.

    "Falling down is also a gift!" says she.

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